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HERO ID
7203768
Reference Type
Journal Article
Title
A scoping review of the needs of children and young people with acquired brain injuries and their families
Author(s)
Keetley, R; Radford, K; Manning, JC; ,
Year
2019
Is Peer Reviewed?
Yes
Journal
Brain Injury
ISSN:
0269-9052
EISSN:
1362-301x
Publisher
TAYLOR & FRANCIS LTD
Location
ABINGDON
Volume
33
Issue
9
Page Numbers
1117-1128
PMID
31282198
DOI
10.1080/02699052.2019.1637542
Web of Science Id
WOS:000474690100001
Abstract
Understanding the needs of children and young people (CYP) with acquired brain injuries (ABI) is essential in delivering pathways of care and providing effective rehabilitation. Aim: To identify relevant literature and key themes relating to the nature and extent of needs (met, unmet or unrecognized) of CYP with ABI and their families. Method: Scoping review. Sixteen electronic bibliographic databases were searched using terms relating to children, brain injury and need. Papers were screened against eligibility criteria by two independent reviewers. No date limits were applied. Data were extracted by the lead author regarding the needs of CYP with ABI and their families and thematic analysis conducted to identify the key themes. Methodological quality was not assessed. Results: A total of 28 articles were identified including three systematic reviews, one scoping review, two practice recommendation articles, and 22 original research studies. Participants included CYP with ABI, parents, siblings, and professionals. Four key themes were identified; CYP-related impairment needs, support needs, return to school and long-term aftercare. Conclusion: CYP with ABI and their families report extensive needs, many of which are often unmet or unrecognized by those supporting the CYP. Needs transcend the health, social care, and education domains.
Keywords
Acquired brain injury; traumatic brain injury; rehabilitation; education; care; children; young people; adolescents; paediatric; needs
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