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HERO ID
7340030
Reference Type
Book/Book Chapter
Title
Ethics in Pediatric Environmental Health Research
Author(s)
Fisher, CB; Feldman, L
Year
2011
Publisher
Elsevier Inc.
Book Title
Encyclopedia of Environmental Health
Page Numbers
609-614
Language
English
DOI
10.1016/B978-0-444-52272-6.00135-5
Abstract
Pediatric environmental health research raises unique ethical issues because of children's legal and social vulnerability and the inextricable involvement of guardians and families in the participation consent process and data collection. The value of pediatric environmental health science data for effective policy depends on the implementation of ethical procedures fitted to children's consent capacities, respect for family decision-making traditions, and sensitivity to family contextual issues involved in exposure and vulnerability to environmental toxins. Community consultation can produce sound evidence on which to meet the ideals of environmental justice, protection of participant and family privacy, and respect for their information needs. © 2011 Elsevier B.V. All rights reserved.
Keywords
Children's health; Community consultation; Confidentiality; Environmental health; Environmental Protection Agency; Ethics; Human subjects; Human subjects protections; Informed consent; Justice; Parental permission; Participatory research; Pediatric research; Privacy; Public Health
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